Book
Reviews
The
Asperger Parent: How to Raise a Child with Asperger Syndrome and Maintain
Your Sense of Humor
by Jeffrey Cohen (March/April
03)
In this "carry-on support group, "Jeffrey Cohen, father of eleven-year-old Josh who was diagnosed with Asperger Syndrome at the age of five, examines what it's like to be the parent of a child with AS- where the pitfalls are and how to do your best to avoid them. With a great sense of humor and welcome, at times unflinching honesty, Cohen looks at all the pride, fear, triumph-and offers a pat on the back, a shoulder to cry on, a kick in the pants or a warm hug, when needed. With an easy-to-read, anecdotal tone, The Asperger Parent provides essential information and emotional support without being clinical and dry.
What Parents and Professionals Are Saying
"Finally, a book
that addresses the PARENTS of children with AS. In the Asperger Parent,
Jeffrey Cohen addresses parental challenges-difficult ones that parents
frequently encounter (such as family and friends believing the problem
is the parents' 'parenting style'). I highly recommend this WONDERFUL
'support' book for all parents of children with Asperger Syndrome."
Diane Adreon, Associate Director, Center for Autism and Related Disabilities
and a parent of a child with AS
"Jeffrey Cohen's
heart-felt story welcomes and connects the reader to the challenging,
yet often humorous world of parenting child with Asperger Syndrome. From
the trials to the victories, to Josh stating that he 'likes having Asperger
Syndrome,' there is much for everyone who wants to further their understanding
of parenting child with Asperger Syndrome."
Stephen M. Shore, Author of Beyond the Wall: Personal Experiences with
Autism and Asperger Syndrome
Sneak Preview
Fear Factor
For most of us, the first time we heard the words "Asperger Syndrome" was when our children were being diagnosed. So we weren't just hearing about a disorder we'd never encountered before, we were being told our children had it.
There are myriad emotions we feel at a time like that: worry, disappointment, sadness, in some cases relief (that it isn't something worse), anger, concern. But the one word that pops up most often when parents talk about their emotions is fear.
We're all afraid of something related to our children's AS, and it's not always the same thing. Some of our fears are entirely rational and based on the scientific data being gathered about Asperger Syndrome, and others will not stand up to logical scrutiny. But they are no less real.
For example: I know, from having read about autism spectrum disorders and literature on AS, that our children, from the time they are about nine years old until they are eighteen, operate on an emotional level that is roughly two-thirds of their chronological age. Josh, at twelve, acts like an eight- or nine-year-old. I also know that this aspect of the disorder will improve; by the time Josh is twenty-four, for example, his emotional age should be indistinguishable from any other man in his mid-20s. I know that because there is scientific proof, literature by clinicians who have performed painstaking studies and formulated conclusions over years of research. I know it because it is a proven scientific fact.
I just don't believe it, that's all.
My deepest fear for Joshua right now is that he will "plateau" emotionally, that he will always be someone who acts like a child. He still cries too easily, uses phrases that are inappropriate for his age, has a higher-than-average voice, and in all manner except physically, could be mistaken for a much younger child. You can tell me from today until the end of next week that AS isn't that kind of condition, that no one with AS has ever exhibited this problem, that every single child with AS manages his or her way through adolescence and eventually find emotional maturity. Even though the intellectual part of my brain will agree with you, the emotional side is from Missouri, and must be shown something before it will believe you. When I can talk to my son and conduct a conversation on the same level as his chronological age, I will be convinced. Until then, it's all theory.
About the Author
Besides being an Asperger parent, JEFFREY COHEN is a freelance writer and screenwriter, whose work has appeared in The New York Times, The Star-Ledger, American Baby, USA Weekend, among many others. He is also the author of For Whom The Minivan Rolls: An Aaron Tucker Mystery. He lives in New Jersey with his wife and two children.
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