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Lynley and Jessica Jazz Summers
Lynley
Summers is a behaviorist working with children and adults
across the autism spectrum. She is an advocate for children
with disabilities in North Carolina and in her native state
of Arkansas. She serves as Parent Educator for the Arkansas
Disability Coalition, whose purpose is to work for equal rights
and opportunities for individuals with disabilities. She also
serves on the Arkansas State Medical Care Advisory Committee.
She represented the state of Arkansas in addressing members
of Congress for the purpose of bringing issues of the autism
community to their attention and building the membership within
C.A.R.E., the Congressional Caucus for Autism Research and
Education. She speaks regularly to parents groups and does
work in the community on behalf of families with autism.
Lynley graduated Summa cum laude from Methodist College with
a bachelor's degree in vocal music performance. Her final
semester was the same fall in which her daughter Jessica was
diagnosed with autism at the age of four. This changed the
course of her life and she dedicated future studies to developmental
disability, linguistics, educational psychology, and behavioral
sciences. As she accumulated post graduate hours, she worked
in college administration at Methodist College, serving respectively
as Assistant Registrar and Director of Career Services. She
also served as an assistant adjunct faculty member and as
an academic advisor. She would leave work each day and administer
Jessicas therapy all evening and into the late hours.
She says of her time there: Working in a place as nurturing
as Methodist College, where my co-workers understood Jessica's
situation, made a real difference in her progress. When I
needed to go and be with her, they made it possible for me
to go. I love my Alma Mater for reasons that go far beyond
the fact that they granted my degree.
Her next employment position was through the Consulate General
of Japan where she spent two years teaching English as a second
language and training new Japanese teachers in language. She
served as a Hyogo Prefecture Special Goodwill Envoy and was
awarded several special certificates for her work as a liaison
officer. She also performed as a full member of a traditional
Japanese Taiko drumming group, Tora Fusujin Daiko. She returned
to America in 2001 to further her graduate work when it was
time for Jessica to enter junior high school.
At that time, she met her husband Steve, a single dad of
two sons, Alex and Averie. Averie, like Lynleys daughter,
also has autism. They are the modern-day Brady's.
Jessica Jazz Summers was born in Arkansas
in 1990. She lived many years in North Carolina, before moving
to Japan with her mother, Lynley Summers. In 2001, they moved
back to Arkansas, and in 2002, her mom and Steve blended their
families adding his two sons to the household. Jazz loves
music and has been in vocal training since she was six years
old. She also plays the piano and composes her own music.
Jazz likes art, especially anime. She writes stories with
complicated plots and illustrates the characters. Someday
she hopes to be a great writer. Her work has been published
in Autism Today's "The Essential Autism 101 Manual"
compilation, where submissions were by invitation only. She
is currently at work on her first book, and while she admits
that non-fiction books are not her favorite, she feels a real
sense of duty to other kids on the autism spectrum.
Jazz is the youngest member of Bobbi McKennas Book
Club for Authors, which is a club intended for adults. Jazz
works in the community to increase autism awareness. She represented
disabled Arkansas children at Arkansas Disability Awareness
Day in 2004, speaking at the State Capitol with the message
that she does not view herself as disabled. She urges others
in the community to do the same with whatever struggles they
may have. She has been the keynote address for People First
Arkansas, Beyond the Borders, and Easter Seals Arkansas, and
was a workshop presenter at the Autism Society of America's
2005 National Convention.
A remarkable young lady, Jazz is currently a student at Mills
University Studies High School, in Little Rock, Arkansas,
which is ranked #50 in the nation by Newsweek.
www.lynleysummers.com
Autism
is Not a Life Sentence: How One Family Took on Autism and
Won!
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