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Hello There!
I'd like to introduce my book The
Mom's Guide to Asperger Syndrome. As
most books, this has been a labor of love, written
as a way to capture all the information that
I had gathered as the mom of an "Aspie"
and share it with other parents who face similar
challenges and joys.
It became clear to me early on that the best
way to parent an Asperger child was by being
as "smart" as I could: reading, researching,
attending lectures, and working with professionals.
I had the time and the desire to do the legwork,
but not every parent is able to do so. The
Mom's Guide is my small gift to those
parents. Topics range from how to get a diagnosis
for a child to handling stress in the family
- and pretty much everything else in between.
The book even gives explicit advice about how
to help generate friendships for your child
- like hosting a theme-based mini-camp in your
backyard for all the second grade boys! Exhausting?
Sure, but it works!
As a professional writer for 20 years, and
nearing my completion of my Master's of Arts
in counseling psychology, I hope that I have
succeeded in writing a thorough but readable
guide that parents will refer to time and time
again. In fact, my hope is that by the time
your child starts middle school, this book will
be so dog-eared, highlighted and worn out it
will be ready for the trash!
I hope you enjoy this book half as much as
I enjoyed writing it.
Best regards,
Jan Johnston-Tyler
This is an excerpt from
pgs. 275-276 of The
Mom's Guide to Asperger Syndrome and Related
Disorders by Jan Johnston-Tyler.
Your Unfulfilled Expectations
Along with looking at your child as a whole
person, you need to examine your own unfulfilled
expectations. This process doesn't get enough
attention, in my opinion. Having a child with
special needs means that something has been
lost, no matter how minor, and as parents, we
need to be respectful of our own need to grieve
over the loss of "normalcy" (whatever
that means).
If you were really good in sports as a child,
it may be difficult for you to raise a child
who is clumsy, awkward, and fears any type of
sport. You may be grieving for a lost chance
to interact with your child in something that
is important to you, something you had as a
child.
If you were very social and popular as a child,
it may be difficult for you to have a shy and
socially withdrawn child who has few friends.
You may have fond memories of neighborhood kids
running in and out of your house, sleepovers,
birthday parties and the like - experience that
your child doesn't have, at least not to the
same extent.
This can be painful, and it will likely bring
up feelings of loss and grief. It may also make
you a "super parent," who will try
anything to achieve for her child what she had
as a child herself, because we tend to equate
our happiness in childhood with our children's
happiness. Whether we like it or not, we have
a strong tendency to live through our children.
This is partly because we are so psychically
and emotionally linked to them that it is sometimes
hard to recognize and respect boundaries between
ourselves and our offspring.
What is important to remember here is that
although we have the right to grieve over our
loss, we must make sure that we are not trying
to remake our children into ourselves or into
some idealized, socially approved child, without
regard for his or her individuality. Seeing
your child holistically instead of as a set
of symptoms goes a long way. Look at the strengths
you can encourage her to develop. Look at what
interests her; what she is passionate about.
Look at what she is already masterful at. There
is so much in any child, if we only try to find
it.
If your child is truly driving you wild, you
may need to examine your expectations. Is it
possible that he's driving you crazy because
he isn't the type of child you had dreamed you'd
be raising one day? Is it possible that the
problem lies more in what you want him to be
rather than with who he is?
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